Making Headway
Find out how Headway West London is using its Community Grant to support people who have experienced a brain injury.
Suffering a life-changing injury of any sort can be devastating, but a brain injury can feel particularly isolating. Effects range from cognitive difficulties to memory issues, fatigue, sensory issues, loss of basic skills, and debilitating headaches. In short, every area of the person’s life can be affected.
William was hit by a car aged 21, while cycling from his home in Hammersmith to his workplace. The collision resulted in a traumatic brain injury. He shares, “It’s been very difficult to go back almost to square one. Adaptation is a key part of recovery. You have to build strategies for the differences you now have – cognitive, memory, attention. High-level cognitive strengths I struggle with now. As a traumatic brain injury survivor, it’s very easy to feel low when you have such differences relative to everyone else.”
Headway West London
William has found advice, support and a community of people who understand what he’s going through at Headway West London. The charity works with people who have survived a brain injury, and their families, carers and other professionals. Laura Murphy, Chair of Headway West London, shares, “You get such great care from the NHS, but when you get discharged from hospital there are real gaps in service offerings. It can feel like a bit of a minefield finding support, whether that be to meet therapeutic needs, or around lifestyle, housing, finances and so on.”
The sense of community that people find at Headway West London is crucial. As William says, “It was very difficult initially to accept what changes I’d have to deal with in my life at that young age. To find the community was really important to me. There are a lot of people who are there recovering with you and supporting you.”
You can hear from other brain injury survivors here.
The REACTIVATE programme
Headway West London has received a grant from Hammersmith United Charities to fund up to eight brain injury survivors on the REACTIVATE programme. REACTIVATE is a 6-week rehabilitation programme, which as Laura explains, “is about giving people the strategies and tools that they can put into practice to help improve their life. Different professionals attend each week to talk about different aspects of wellbeing and recovery. It’s about maximising rehabilitation, whether that’s physical or psychological. This grant enables us to reach more members in the H&F area.”
The groups are kept small so that each session can be tailored to the individuals’ specific needs. Brain injuries vary in severity and impact, and they can be experienced alongside physical disabilities. The REACTIVATE sessions are designed to be as inclusive as possible. For instance, if the group is being taught yoga techniques to aid relaxation, then chair-based exercises will be included for people with mobility issues.
Laura adds, “We have two part-time link workers, who work closely with REACTIVATE members. For example, some members might be able to engage well with the sessions but won’t remember that the sessions are on so will need phoning to be reminded. Other people might find it really challenging to attend in person, so we’ve offered hybrid sessions where they can attend online.”
“One of the most important things is bringing people together who have a shared experience and mutual understanding. That’s hugely important. You can just be yourself and be open about all the problems you’re having. You don’t have to explain why you find some things difficult. A lot of them become like peer mentors for each other, start their own WhatsApp group and encourage each other to stay on top of things, keep up with friends, go out for walks and so on.”
Feedback for REACTIVATE has been overwhelmingly positive, with a recent participant saying, “A great job running the workshops. These last five weeks have been very beneficial post surgery, in getting out of the house and safely connecting with useful information and people who understand some of the current difficulties. It’s a great course, and I’m really glad I joined the group.”
Supporting Headway West London
Do you have a few hours free each week? Headway West London is looking for more people to volunteer. You might have a specific skill, like art or yoga, to share with members, or experience that would be invaluable for the charity, such as social media. Headway West London is also recruiting new trustees and is particularly keen to hear from people who have lived experience of a brain injury, or a background in HR. Contact Headway if you feel that you can help.
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